RESOURCES:
​Niagara County Dept. of Health & Early Intervention Services:
716-278 -1991
Down Syndrome Health:
Parent Network of Western NY:
(716) 332-4170
Down Syndrome Parents Group of WNY:
(716) 832-9334
GiGi’s Playhouse Of Buffalo:
https://gigisplayhouse.org/buffalo/
(716) 322-0010
PARENT RESOURCES:
Down Syndrome Pregnancy
Provides honest, compassionate, medically-reviewed, and informative support for those preparing for the birth of a baby with Down syndrome.
http://downsyndromepregnancy.org/
National Down Syndrome Congress
Whether you are celebrating the birth of your child or anticipating his or her arrival, we congratulate you! We know this journey is not without its unique challenges and new experiences, but rest assured, you are not alone. Instead, you have become part of a large, deeply caring and warmly welcoming community.
https://www.ndsccenter.org/programs-resources/what-is-down-syndrome/
MEDICAL COMMUNITY OUTREACH:
Down Syndrome Clinic Listings:
The Physician’s Guide can help you find information on how best to deliver a diagnosis, as well as more information on the importance of your role.
https://www.ndsccenter.org/programs-resources/health-care/down-syndrome-clinics/
What You Say Really Matters
A Balanced Approach in Giving a Diagnosis of Down Syndrome
https://drive.google.com/open?id=0B2ORVF523rU5elJPMkRjcjhOdjQ
OTHER ONLINE RESOURCES:
Canadian Down Syndrome Society
The CDSS strives to create a proud Canada where all are welcome.
Developmental Disabilities Alliance of Western New York
Collaborative group of member voluntary agencies that provide services to people with developmental disabilities.
Disability Resources
Disability resources on the Internet, featuring thousands of the best web sites conveniently arranged by subject or state.
Disability Solutions
A resource for families and others interested in Down syndrome
Down Syndrome Online
The best of Down syndrome research, practice, news and reviews in accessible formats
Down Syndrome Research & Practice
A comprehensive, reliable and up-to-date range of information, resources and services for families.
www.down-syndrome.org/research-practice/
Emergency Dentists USA
Dental care blog
https://www.emergencydentistsusa.com/about/
Exceptional Parent
The family and professional site for the special needs community
National Down Syndrome Congress
NutriChem
NuTrivene-D
Nutritional and dietary supplements
Parent to Parent of New York State
Connecting and supporting families of individuals with special needs.
Down Syndrome Pregnancy
Provides honest, compassionate, medically-reviewed, and informative support for those preparing for the birth of a baby with Down syndrome.
http://downsyndromepregnancy.org/
Inclusive Schooling offers live and online courses, workshops, presentations and innovative support focused on creating and supporting more inclusive schools.
http://www.inclusiveschooling.com/
National Association of Down Syndrome
NADS is the oldest organization in the country serving individuals with Down syndrome and their families.
The Oral-Motor Myths of Down Syndrome By: Sara R. Johnson, MS SLP-CCC
http://www.3of21.com/2012/11/oral-motor-myths-of-down-syndrome.html
Reece’s Rainbow’s mission is to advocate and find families for orphans with Down syndrome and other special needs concerning adoption.
FACTS:
DOWN SYNDROME FACTS:
•Down syndrome occurs when an individual has three, rather than two, copies of the 21st chromosome. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome.
•Down syndrome is the most commonly occurring chromosomal condition. One in every 691 babies is born with Down syndrome.
•More than 400,000 people live with Down syndrome in the United States.
•Down syndrome occurs in people of all races and economic levels.
•The incidence of births of children with Down syndrome increases with the mother's age. But due to higher fertility rates in younger women, 80% of children with Down syndrome are born to women under 35.
•People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer's disease, childhood leukemia, and thyroid conditions. Many of these conditions are now treatable, so most people with Down syndrome lead healthier lives than years ago.
•A few common physical traits of Down syndrome are low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm. Every person with Down syndrome is unique and may possess these characteristics to different degrees or not at all.
•Life expectancy for people with Down syndrome has increased dramatically in recent decades - from 25 in 1983 to 60 today.
•People with Down syndrome attend school, work, participate in decisions that affect them, and contribute to society in many wonderful ways.
•All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and does not indicate each individual's many strengths and talents.
•Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends, and the community enable people with Down syndrome to develop their full potential and lead fulfilling lives.
•Researchers are making great strides in identifying the genes on Chromosome 21 that cause the characteristics of Down syndrome.
Many feel strongly that it will be possible to improve, correct or prevent many of the problems associated with Down syndrome in the future.